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What is scoliosis?

Scoliosis (from the Ancient Greek word for “bending”) is a medical condition that involves the curvature of the spine. Normal spines have an ‘S’ curve to them; the spines of those with scoliosis also have a curve from side to side.

Scoliosis can be genetic (as a result of vertebral abnormalities developed in utero), “idiopathic” (arising for no apparent reason), or related to another disorder such as spina bifida or cerebral palsy. (Typically, anything that has people staying in one position for extended periods of time or has a condition that hinders mobility increases the risk of scoliosis.) It can develop at any age, although many idiopathic cases of scoliosis develop in childhood and adolescence.

Things to Remember 22 Truths People with Scoliosis Wish Others Understood

An estimated six to nine million people in the United States live with scoliosis. The condition, which causes abnormal curving in the spine, is often overlooked and mistaken for common back pain. But if not treated early, scoliosis can cause lifelong pain, decreased mobility and, in more severe cases, decreased organ function.

The Mighty wanted to learn more about the often misunderstood condition, so we reached out to ScoliSMART, an organization dedicated to informing the public about scoliosis and the need to find better treatment. The group asked its readers on Facebook and its Scoliosis Warriors Discussion Group page to share one thing they wish others understood about scoliosis.

This is what we learned: